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‘I Get How Hard It Is’

Teresa Dood, Parkview Elementary’s Kent School Services Network coordinator, brings an awareness that is deep and real to her job linking families with resources.

For her, navigating complicated systems and overcoming seemingly impossible barriers is personal.

From her school office, Dood explains how heartbreaking experiences can, with time, become life lessons that allow her to relate to other families and empathize with what they face. Consider her current battle: Dood is the single mother of three adopted children, one of whom has Duchenne muscular dystrophy and needs a potentially life-prolonging medication that insurance keeps denying.

Appreciating Community Servants

By Morgan Jarema

In recognition of the role they play in connecting schools with the neighborhoods they serve, Sept. 25-29 has been designated as Community School Coordinators Appreciation Week. The recognition is an effort of the Coalition of Community Schools, Communities In Schools, the National Center for Community Schools at the Children’s Aid Society, the Beacon National Network, and the Netter Center for Community Partnerships at the University of Pennsylvania.

Thirty-four Kent Schools Services Network community school coordinators currently work in 40 schools representing 21,000 students in eight Kent County districts, plus the student programs at Kent ISD. Coordinators bring health and human services into the school building to help students and families.

KSSN partners with Arbor Circle, D.A. Blodgett-St. John’s, and Family Outreach Center to staff site team clinicians for onsite mental health services. It also works withthe Michigan Department of Health and Human Services of Kent County and Spectrum Health Healthier Communities to provide nurses, health aides, and success coaches who help families gain self-sufficiency and get needed services.

This year, KSSN is working with Ottawa Area ISD, Coopersville Public Schools, Holland Public Schools and Zeeland Public Schools to expand the community school model into Ottawa County school districts.

Related Story: Team Targets ‘Anything That Might Impede Education’

A year and a half ago, Dood was fostering her son, now 4, and preparing to adopt him when he was diagnosed with Duchenne, a rare genetic disorder that overwhelmingly affects boys and is characterized by progressive muscle degeneration and weakness. (He and his siblings’ names are not being published due to privacy concerns.) The typical life expectancy of a person with Duchenne is the early 20s.

“That was devastating to me: to learn that this little boy who I so deeply love would have yet another challenge outside of other early-life trauma to overcome, that will ultimately end his life,” Dood said.

But Dood’s son is among 13 percent of Duchenne patients with a genetic mutation that qualifies him for a newly approved drug called Exondys 51, a gene-skipping therapy, which was given accelerated approval by the Food and Drug Administration. Said Dood, “It has the potential to give him a typical lifespan.”

However, the drug costs a minimum $300,000 a year for weekly injections — and Dood’s son needs it for the rest of his life.

She has gone through all internal appeals within Medicaid and received repeated denials, because drug studies on Exondys 51 were not expansive enough. Her claim will next go to an external appeal through the State of Michigan. Other families are facing similar battles to get the drug covered.

“My son won’t get back the skills he has already lost, but it will help maintain his skill levels,” Dood said.

She’s hoping if the external appeal is denied, the drug manufacturer, Sarepta Therapeutics, will cover the cost of the drug because her son can provide valuable data for further study of the medication.

She’s That Go-to Person

At Parkview, where approximately 90 percent of families qualify for free or reduced lunch, Dood works with students and families to eliminate barriers to students’ success at school and establish community partnerships to meet larger schoolwide needs.

A Wyoming native, she has formed partnerships with churches, and received grant funding for a monthly visit from a Feeding America Food Truck. She is starting a program called Good Guys to bring in fathers and other male role models to volunteer.

Parkview teacher Lori Schimmelmann said Dood is the go-to person for many needs at Parkview.

“Teresa gives of herself 110 percent for our Parkview kids,” Schimmelmann said. “When we have a student with a need, Teresa is the first person we call. If she can’t help us, she finds us someone that can. She does everything in her power to make sure that our Parkview kids have what they need to be successful.”

Dood has a bachelor’s degree in secondary education from Calvin College. She taught for a brief time before switching to children’s and youth ministry positions at local churches for 10 years. After that, she became a site coordinator forTEAM 21, the after-school program serving Wyoming Public Schools, for several years before beginning as the KSSN coordinator five years ago.

“I am passionate about impacting kids and families in our community, and I’m passionate about education,” Dood said. “I also see how sometimes people’s life challenges get in the way of kids being successful.

Teresa Dood checks out fourth-grader Madison Dehaan’s glittery arm

“I get excited when I see families come full circle from sometimes needing a lot of supports or resources, to becoming empowered and equipping their family to then being able to share that with others.”

It’s Dood’s everyday interactions with students and families that stands out most, said Principal Katie Jobson.

“Teresa does a great job building relationship with families,” Jobson said. “She brings a good balance between understanding what might be a barrier to families, and seeing the education perspective of what schools are trying to accomplish. She’s really good at bridging those gaps so we are all on the same team.

“Her own unique set of personal experience help her understand where families are coming from in a way that other people may not be able to understand,” she added. “That’s always a comfort to families to understand that somebody gets it.”

Teresa Dood brings her experiences of fostering and adopting as a single mother to her job connecting families with resources

Learning the System

Those personal experiences include fostering 20 children over the years and raising her adopted children from infancy. Explained Dood, “I describe foster care as having some of the greatest highs and the greatest lows. There’s amazing joy … yet there’s been some really hard stuff too.”

There’s also been a lot of navigating red tape.

“I have experiences of going through the IEP (Individualized Education Program for special education students) and having a child with significant behavioral challenges, and I know how it is to work the public mental health system in Kent County,” she said.

She also knows about judgment quickly cast on parents of children with mental health challenges. She wants to lift up families and break down stereotypes and stigmas: “I’ve walked the mental health world with my kids and seen how taxing that is with the other kids in the family and the parents.”

So now she walks beside parents, building relationships and being supportive. To them she can say, “‘You know, I get how hard it is. … I get that it’s hard and I get that it’s a sacrifice, but your kid needs you to be part of the solution.'”

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Erin Albanese
Erin Albanese
Erin Albanese is managing editor and reporter, covering Kentwood, Lowell and Wyoming. She was one of the original SNN staff writers, helping launch the site in 2013, and enjoys fulfilling the mission of sharing the stories of public education. She has worked as a journalist in the Grand Rapids area since 2000. A graduate of Central Michigan University, she has written for The Grand Rapids Press, Advance Newspapers, On-the-Town Magazine and Group Tour Media. Read Erin's full bio


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